Working Groups

Working Groups are composed of experts from different disciplines including patient representatives to develop one of our Condition Specific Modules.

Once the module is developed, it is available for different Study Groups to perform a study with data from the module, and the Working Group will be dismantled. Please find below our current active Working Groups:

• Hypoparathyroidism
• Prolactinoma
• ROHHAD

If you would like to join or start a Working Group please contact us at: registries@lumc.nl. Please take a look at our Working Group remit for more information.