ROHHAD
This Working Group is currently working on creating a ROHHAD module.
Members of this Working Group
| Name | Expertise / Role | Country |
| Lead: Mehul Dattani | paediatric endocrinologist | UK |
| Ana Priego Zurita | paediatric endocrinologist, EuRREB data quality manager | the Netherlands |
| Elisabeth Hunter | ePAG ROHHAD association | UK |
| Faisal Ahmed | paediatric endocrinologist | UK |
| Flavia Napoli | paediatric endocrinologist | Italy |
| Federica Buonocore | research fellow | UK |
| Guftar Shaikh | paediatric endocrinologist | UK |
| Hanneke van Santen | paediatric endocrinologist | the Netherlands |
| Katherine Hawton | paediatric endocrinologist | UK |
| Manuela Cerbone | geneticist | UK |
| Mohamad Maghnie | paediatric endocrinologist | Italy |
| Natasha Appleman-Dijkstra | internist-endocrinologist, EuRREB coordinator | the Netherlands |
| Rita Fussenegger | patient representative | Germany |
For more information regarding the module or if you are interested in joining this working group, please contact registries@lumc.nl.