Fibrous Dysplasia / McCune Albright Syndrome (FD/MAS)
This Working Group has created the FD/MAS module.
Members of this Working Group
| Name | Expertise / Role | Country |
|---|---|---|
| Lead: Natasha Appelman-Dijkstra | internist-endocrinologist, EuRREB coordinator | the Netherlands |
| Ana Priego Zurita | pediatric endocrinologist, EuRREB quality manager | the Netherlands |
| Daniele Tessaris | pediatric endocrinologist | Italy |
| Diana Ovejero Crespo | endocrinologist | Spain |
| Gerry Hazekamp | patient representative, FD/MAS Foundation | the Netherlands |
| Kassim Javaid | rheumatologist | UK |
| Lothar Seefried | orthopedic surgeon | Germany |
| Magdalena Caballero Campos | patient representative | Spain |
| Nerea Arrieta Urriategi | patient representative | Spain |
| Oana Bulaicon | endocrinologist | the Netherlands |
| Pieter Bas de Witte | orthopaedic surgeon | the Netherlands |
| Roland Chapurlat | rheumatologist | France |
| Sophie Huisman | PhD student | the Netherlands |
| Stijn van der Meeren | ophtalmologist | the Netherlands |
For more information regarding the module or if you are interested in joining this working group, please contact registries@lumc.nl.