Rare Hypophosphatemia
This Working Group has created the Rare Hypophosphatemia module.
Members of this Working Group
| Name(s) | Expertise / Role | Organisation |
|---|---|---|
| Lead: Agnès Linglart | pediatric endocrinologist | France |
| Co-lead: Diana-Alexandra Ertl | pediatric endocrinologist | France |
| Adalbert Raimann | pediatric endocrinologist | Austria |
| Ana Priego Zurita | pediatric endocrinologist, EuRREB Quality Manager | the Netherlands |
| Carola Zillikens | endocrinologist | the Netherlands |
| Daniëlle van der Kaay | pediatric endocrinologist | the Netherlands |
| Gabriel Mindler | pediatric orthopaedic surgeon | Austria |
| Karine Briot | rheumatologist | France |
| Maria Luisa Brandi | endocrinologist | Italy |
| Marine de Tienda | pediatric orthopaedic surgeon | France |
| Martha Kirchhof | patient representative, ePAG Endo-ERN | Germany |
| Ola Nilsson | pediatric endocrinologist | Sweden |
| Oliver Gardiner | patient representative | United Kingdom |
| Peter Kamenicky | endocrinologist | France |
| Tenna Toft | patient representative, ePAG ERN BOND | Denmark |
| Mariya Cherenko | endocrinologist, EuRREB Data Manager | the Netherlands |
For more information regarding the module or if you are interested in joining this working group, please contact registries@lumc.nl.