Osteogenesis Imperfecta (OI)
This was the 2021-2026 Working Group who provided the base of the OI module.
Members of this Working Group
| Name | Expertise / Role | Country |
|---|---|---|
| Lead: Wolfgang Högler | pediatric endocrinologist | Austria |
| Carola Zillikens | endocrinologist | the Netherlands |
| Claudia Finis | patient representative | Germany |
| Dagmar Mekking | representative and project manager Key4OI | the Netherlands |
| Eva Åström | pediatrician | Sweden |
| Hans-Georg Zmierczak | rheumatologist | Belgium |
| Ingunn Westerheim | patient representative | Norway |
| Ralf Oheim | osteologist | Germany |
| Rebecca Skarberg-Tvedt | patient representative, ePAG ERN BOND | Norway |
| Taco van Welzenis | patient representative | the Netherlands |
For more information regarding the module or if you are interested in joining this working group, please contact registries@lumc.nl.