Osteogenesis Imperfecta (OI)

This was the 2021-2026 Working Group who provided the base of the OI module.

Members of this Working Group

Name	Expertise / Role	Country
Lead: Wolfgang Högler	pediatric endocrinologist	Austria
Ana Priego Zurita	pediatric endocrinologist, EuRREB quality manager	the Netherlands
Claudia Finis	patient representative	Germany
Dagmar Mekking	representative and project manager Key4OI	the Netherlands
Eva Åström	pediatrician	Sweden
Guus Janus	orthopaedic surgeon	the Netherlands
Hans-Georg Zmierczak	rheumatologist	Belgium
Ingunn Westerheim	patient representative	Norway
Natasha Appelman-Dijkstra	internist-endocrinologist, EuRREB coordinator	the Netherlands
Ralf Oheim	osteologist	Germany
Rebecca Skarberg-Tvedt	patient representative, ePAG ERN BOND	Norway
Taco van Welzenis	patient representative	the Netherlands

For more information regarding the module or if you are interested in joining this working group, please contact registries@lumc.nl.

Visiting address

Leiden University Medical Center
Department of Endocrinology
Room C7-57, route 222
Albinusdreef 2
2333 ZA Leiden, the Netherlands

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