Melorheostosis

This Working Group has created the Melorheostosis module.

Members of this Working Group

Name Expertise / Role Country
Lead: Martine Cohen-Solal rheumatologist, co-chair ECTS RBDAG France
Bo Abrahamsen endocrinologist, ECTS board member Denmark
Carola Zillikens endocrinologist the Netherlands
Corinna Grasemann endocrinologist Germany
Gavin Clunie rheumatologist United Kingdom
Heide Siggelkow endocrinologist, ECTS board member Germany

Luca Sangiorgi

endocrinologist, ERN BOND coordinator

Italy
Mariya Cherenko endocrinologist, EuRREB data manager the Netherlands
Natasha Appelman-Dijkstra endocrinologist, EuRREB coordinator the Netherlands
Thomas Funck-Brentano rheumatologist France
Willem Lems rheumatologist, ECTS board member the Netherlands

For more information regarding the module or if you are interested in joining this working group, please contact registries@lumc.nl.