by Jacqueline van der Blom | May 8, 2025 | General
We are excited to announce that the Langerhans Cell Histiocytosis (LCH) module is now live on the Core Registry platform! This condition-specific module activates automatically once a patient with LCH is entered into the system – making data collection seamless...
by Jacqueline van der Blom | Mar 13, 2025 | General
Call for abstracts is now open for the upcoming European Society for Paediatric Endocrinology (ESPE) and French rare diseases healthcare network (OSCAR) being held 18-19 September in Paris France. Late-breaking abstract submission deadline 27 April, 2025, 23:59 CET....
by Jacqueline van der Blom | Oct 17, 2024 | General
EuRREB is currently creating a module for endocrine and bone complications in Langerhans Cell Histiocytosis in collaboration with the ERN-EuroBloodNet (European Reference Network on Rare Hematological Diseases). Langerhans Cell Histiocytosis is a haematological...
by Jacqueline van der Blom | Oct 17, 2024 | General
Now showcasing all our Participating Centres on our website! We are excited to introduce our new Participating Centres on our website. This new page provides a comprehensive overview of all the contributing centres and their participation in our different platforms,...
by Jacqueline van der Blom | Oct 17, 2024 | General
We are excited to share our latest publication: [link-to-publication id=1122 org=’Publ: The Role of the European Reference Network for Rare Bone …’] In this comprehensive review, we delve into the pivotal role of ERN BOND and EuRR-Bone in...
by Jacqueline van der Blom | Jul 22, 2024 | General
The Leiden University Medical Center (LUMC) receives an European grant for the database for rare endocrine and bone disorders. The LUMC Endocrine department was granted 1.7 million by the European Commission to further develop the database for rare endocrine and bone...
