by Jacqueline van der Blom | Dec 21, 2023 | General
This condition specific module was launched in October 2023 and is the work of the Gender Incongruence Study Group. The access to transgender healthcare, especially for children and adolescents, varies extremely across Europe, depending on where they live. In some...
by Jacqueline van der Blom | Dec 21, 2023 | General
Our website is now accessible to accommodate all visitors and users, including people with disabilities. Our website visitors who are visually impaired can use our new accessibility tool. Click on the accessibility icon in the top right corner of our website and check...
by Jacqueline van der Blom | Dec 21, 2023 | General
Find out everything there is to know about our e-REC and Core Registry on our: Frequently Asked Questions (FAQ) page. If you still have a question after reading the FAQ’s, please contact us at [mail-main]. In addition to our FAQ page for professionals we also...
by Jacqueline van der Blom | Sep 23, 2023 | General
Are you interested in putting data of your patients with rare endocrine and bone/mineral conditions into our registries, but need help to get started? We can show you how to enter the data and answer any questions you might have related to our registries. Drop-in for...
by Jacqueline van der Blom | Sep 23, 2023 | General
Study Groups are composed of experts from different disciplines including patient representatives. Each group brings together their expertise to accomplish its objectives. These might include developing research projects within the registries such as developing...
by admin | Apr 6, 2023 | General
On Monday April 3rd 2023, the first joint EuRRECa/EuRR-Bone symposium took place in Leiden, the Netherlands. With participants representing 11 countries we celebrated five years of the registries, took a look at our future plans, and exchanged knowledge. We got to...
