by Jacqueline van der Blom | Apr 28, 2024 | General
We are excited to announce our most advanced release of the e-REC platform dashboard so far! Check out our newest features after our recent e-REC platform dashboard update. We now show the counting cases per general condition group of the electronic REporting of new...
by Jacqueline van der Blom | Mar 21, 2024 | General
On behalf of the Osteogenesis Imperfecta Study Group within the Core Registry platform we invite you to participate in the upcoming “Pain Study in Osteogenesis Imperfecta (OI).” This initiative seeks to comprehensively evaluate chronic and acute pain...
by Jacqueline van der Blom | Feb 19, 2024 | General
The European Pediatric Differentiated Thyroid Carcinoma (ped-DTC) Study Group proudly announces the launch of its specialized module. This module, initiated in January 2024, aims to advance understanding and treatment outcomes for pediatric patients diagnosed with...
by Jacqueline van der Blom | Dec 21, 2023 | General
This condition specific module was launched in October 2023 and is the work of the Gender Incongruence Study Group. The access to transgender healthcare, especially for children and adolescents, varies extremely across Europe, depending on where they live. In some...
by Jacqueline van der Blom | Dec 21, 2023 | General
Our website is now accessible to accommodate all visitors and users, including people with disabilities. Our website visitors who are visually impaired can use our new accessibility tool. Click on the accessibility icon in the top right corner of our website and check...
by Jacqueline van der Blom | Dec 21, 2023 | General
Find out everything there is to know about our e-REC and Core Registry on our: Frequently Asked Questions (FAQ) page. If you still have a question after reading the FAQ’s, please contact us at [mail-main]. In addition to our FAQ page for professionals we also...
