The Leiden University Medical Center (LUMC) receives an European grant for the database for rare endocrine and bone disorders. The LUMC Endocrine department was granted 1.7 million by the European Commission to further develop the database for rare endocrine and bone...

We are pleased to announce the release of a comprehensive new EuRREB publication: "Venous Thromboembolism in Cushing Syndrome: Results from an EuRRECa and Endo-ERN Survey". This new EuRREB publication: "Venous Thromboembolism in Cushing Syndrome" is pivotal research...

As of 1 June 2024, the Leiden University Medical Center (LUMC) is pleased to announce the appointment of Professor Dr. Natasha Appelman-Dijkstra as Professor of Internal Medicine, specializing in Bone and Mineral Conditions. In her new role, Professor...

Leiden, Netherlands – Elise Roeleveld, a medical student at Leiden University Medical Centre (LUMC), has recently completed a notable research internship at the European Registries for Rare Endocrine and Bone Conditions (EuRREB)....

Celebrating Success! Our EuRREB Symposium 2024 was a great success! Held on Monday April 22nd at the Radisson Blu hotel in Milan, Italy, it was an incredible gathering of passionate individuals dedicated to advancing research and improving the quality of patient care...

We are excited to announce our most advanced release of the e-REC platform dashboard so far! Check out our newest features after our recent e-REC platform dashboard update. We now show the counting cases per general condition group of the electronic REporting of new...

On behalf of the Osteogenesis Imperfecta Study Group within the Core Registry platform we invite you to participate in the upcoming "Pain Study in Osteogenesis Imperfecta (OI)." This initiative seeks to comprehensively evaluate chronic and acute pain experiences and...

The European Pediatric Differentiated Thyroid Carcinoma (ped-DTC) Study Group proudly announces the launch of its specialized module. This module, initiated in January 2024, aims to advance understanding and treatment outcomes for pediatric patients diagnosed with...

This condition specific module was launched in October 2023 and is the work of the Gender Incongruence Study Group. The access to transgender healthcare, especially for children and adolescents, varies extremely across Europe, depending on where they live. In some...