Osteogenesis Imperfecta (OI)

This Working Group has created the OI module.

Members of this Working Group

Name Expertise / Role Country
Lead: Wolfgang Högler pediatric endocrinologist Austria
Carola Zillikens endocrinologist the Netherlands
Claudia Finis patient representative Germany
Dagmar Mekking representative and project manager Key4OI the Netherlands
Eva Åström pediatrician Sweden
Hans-Georg Zmierczak rheumatologist Belgium
Ingunn Westerheim patient representative Norway
Jamie Watson patient representative United Kingdom
Ralf Oheim osteologist Germany
Rebecca Skarberg-Tvedt patient representative, ePAG ERN BOND Norway
Taco van Welzenis patient representative the Netherlands

For more information regarding the module or if you are interested in joining this working group, please contact registries@lumc.nl.